Hello, my name is Sara. I’m a 43yo queer person. I was diagnosed ADHD and dyscalculia at 41 and autistic at 42. I am also undiagnosed EDS (I have a lot of markers, but can’t pass the test. More on that in later post).
Why was i diagnosed so late?! I wouldn’t have been diagnosed at all if it wasn’t for me starting out as a substitute teacher back in 2009. It got me thinking. But people didn’t believe me and I looked through the DSM V and I didn’t believe me either. A bit later I got on Twitter again and doctors were telling my brother he was probably autistic. So in reading autistic people’s posts on Twitter I was like, hey, I do that too. I do that too! Omg…I do so many of these things! I then was able to start piecing parts of the DSM V to what I did, and I hit. Every. Button!! (Proverbial button).
I got an eval with a psychologist 1.5 hours away. They, a female, did not perform any of the tests that are in a proper autism eval. I was crushed when I was told I wasn’t autistic. I learned much later why. It’s not just men that won’t diagnose adults as autistic.
in the middle of the great pandemic of 2020 I got a new eval with a different doctor. I went much better prepared. I did the Cat-Q online and printed that off with my score. I did a few others, some of which my new dr also did. This helped me realize that none of these were done with my other dr. This time I got my autism diagnosis (dx).
So, here I am, 1.5 years later, still in a pandemic, and yes I know more about myself, which is a huge blessing, but I’ve had more meltdowns in the past two weeks than my whole life. I’m in the middle of a huge autistic burnout. Work burnout. Just…burnt out.
Hopefully more to come later. Again, ADHD, so it may not be consistent.
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